I have radiation fibrosis syndrome, although many of my doctors don't use that term, and instead, say fibrosis caused by radiation or other medical conditions. .

I don't link all my polyneuropathy in the hands, legs and feet due to radiation since I had it after chemo, and before starting radiation, but others I do such as the osteoradionecrosis that required jaw replacement, brachial Plexopathy, which paralyzed my left arm, the fibrotic neck tissue as we call "leather neck", which necessitated calf skin paddle to close the neck after my last surgery, sensation loss, and complete shrinkage of the trapezoid muscle was mainly due to the radical neck dissection, but the excess radiation, over 200Gy, didn't help matters, so my left neck, shoulder and back area are complete bone as atrophy does follow the fibrosis, and is effecting my hands too, mainly left where most my radiation, and all surgeries were, and have carpel and cubital tunnel syndrome.

Another issue is after long standing or sitting without back support, my neck starts burning, pulling, and head drops down. They call that head drop believe it or not. I have read literature suggesting a neck collar to wear when doing certain tasks for energy conservation. When I mention "drop head" to some of my non cancer doctors they laugh, thinking I'm joking around, so it's not fully recognized or understood by many doctors.

As you know RFS is lifelong, and not much can be done, but physical therapy is strongly advocated, and some select treatments. I found most PT to be disappointing, and fitting them in my schedule with other dr visits and blood tests is a hassle, and tiring as I don't drive anymore. I plan on doing my own PT, such as weight lifting , stretching, maybe learns few Myofascial release and Lymphdemia massage techniques, and start yoga and thai chi. I hope to get in the pool one day, but walking right now, not far either, maybe 100 yards before I need to rest and go back, but you gotta start somewhere, and I used to be a gym rat most my life around 250lbs.

I did require prescription from pain management for oxycodone to get started after my most recent back pain, which I found out after testing to be from arthritis, stenosis, a few disk herniation, and others in the lower back. A neurologist mentioned cabol injection, but I'm not doing that right now. I already take gabapentin, very minimal dosage then I'm really supposed too.

That's basically what I'm trying to do like you, keep active, but I also have to be careful since I developed osteoporosis in the hip.