 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Just remember... everybody's different so what you see here may not apply to your situation. I cant really comment much on my aftercare as my case wasnt the norm. I was in the burn unit and then ICU after my surgery. I think I was told the burn unit was for more constant care and attention to wounds, germs, etc.
I did not lose any hair. My doc took half of my lower jaw from the center of my chin all the way back to the TMJ area. My mandibulectomy was due to having cancer in my jawbone so which was the third time I had OC in 3 years. My docs took extra wide margins to make certain there would not be any cancer missed.
From what Ive heard from others, hair loss was not part of this surgery. Many who have had a piece of their leg bone relocated to their jaw report their leg being the most uncomfortable or even painful part of it. You may need PT to help get you back on your feet. Those who have had a mandibulectomy due to ORN, go thru the same thing as those who have the surgery to remove cancer.
Best wishes!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
