Good Evening,

I was diagnosed with SCC in July, 2017 after an ENT did a syringe biopsy of the large mass in my neck that blew up very quickly. ENT wanted to immediately do a tonsillectomy, but I went to MD Anderson instead. Subsequent operating room biopsy confirmed BOT SCC HPV-16, and surgeon did not remove my tonsils. They are planning to start radiation treatment, but now trying to win the appeal of a denial by my insurance for their coverage of Proton Therapy. Has anyone else received Proton Therapy in order to reduce the side effects? If so, did they pay out-of-pocket or successfully get insurance to pay?

Thank you for any information that you can share.