 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 8 | Hi Dan,
You may not have a choice with PMH when it comes to the tube. John was told he had to have it and that was it. Do you know how much radiation you will be getting -- how many grays? John had 70 grays over 35 days and that was the lifetime maximum for that area of the body. By the middle of week 3, he could no longer swallow because it was so painful, not even a sip of water.
If you are able to swallow consistently, then the swallowing exercise may not be necessary. The exercises help mitigate the effects of the swallowing muscles becoming atrophied.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| 
