Tink, hang in there. Your story was my husband at the end of treatment. It does get better. My husband had a PEG tube and it kept him alive. He had times when he struggled to meet the intake benchmarks even with a PEG. People could not understand why he could not just pour the calories into the PEG and call it good. What you are describing made it a way more complex problem than people could grasp. I am just going to say that recovery was a slow process for him but he did get his PEG tube out. Most of the symptoms you described have faded to be replaced with some other challenges in the eating department, related mostly to lack of saliva production and no return of his appetite. However, he can eat and we hold out lots of hope that over time it will get better. He keeps trying and fights off getting down about what he can't enjoy eating that he used to enjoy. You too, will get through it. Stay in touch with your treatment team as needed. He works full-time and is taking two separate trips in September. Try not to get discouraged. He could not go in a store for months because the smells made him throw up. Now we grocery shop together and look for things he might be able to try. Recovery is a long, slow process but better days are ahead in the future.


Wife to DP. DX SCC BOT 1/31/17
First treatment 2/27/2017 Cisplatin 3 times and IMRT
Last treatment 4/18/2017
Clear PET 7/13/2017
PEG removed 8/4/2017