I can only tell that during treatment my husband, eating with a PEG tube, was having a huge struggle with lots of digestive issues. The protocol from the Cancer Center just was not providing results that were improving his situation. We made an appointment with the GI doc who put in his PEG tube. We took everything the Center told us to do and reviewed it with him. Best money we ever spent. He modified what we were doing to deal with several digestive issues related to treatment, with fiber management being one of them. In a nutshell, he felt they were being too conservative with what they were telling us to do. It made a huge difference. He had us try his first line of treatment and told us to call ASAP if this did not work and he would help us modify. He is still using his PEG tube but less and we have had to adjust as he has started eating more foods. You may need to let someone on your team know and ask for a different approach.


Wife to DP. DX SCC BOT 1/31/17
First treatment 2/27/2017 Cisplatin 3 times and IMRT
Last treatment 4/18/2017
Clear PET 7/13/2017
PEG removed 8/4/2017