I did not take any meds to help with the grey/white tongue. It only happened once in a while when I got really cold outside. It was just a freak thing that would come out of the blue. I was outside going from my front door to my car about 30 ft away in the winter when it hit me. That fast, in only about 10 seconds my tongue circulation quit on me. It only lasted a few minutes and then I didnt have it happen again for weeks. I talked with my ENT about the problem but I just cant remember that far back to what he told me. I know there wasnt anything he could do to help me with it.

I would think the ENT would be much more familiar than the oncologist. The ENT specializes in the head/neck areas where the oncologist probably treats all types of cancer. Oral cancer is relatively rare, that doctor may not have seen many patients who have had it. Sounds odd but even most dentists are not familiar with OC patients as many have not ever seen anyone with OC.

We are all in this together. Im sure you wife will feel at home with our group as we have been thru what she has and we know how lousy it is to go thru those things. The entire this STINKS!!!!... to say the least.

Your wife's tongue problem could be related to something with her surgery or poor circulation caused by some kind of inflammation. As with any surgery the patients will experience swelling so your wifes numbness is completely normal. Im sure this can be very troubling to your wife. Id be upset about it too! Please understand, Im not a doctor and I do not have a medical background so I may not know things an experienced doctor would. But, I also probably know many things the doctors dont as Ive talked with thousands of OC patients over the years about all sorts of issues. Im especially a wiz with the problems patients have with their feeding tubes