Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Samar Im very sorry to read about what you have been thru. By spending time reading thru posts and also on the main OCF site, you will learn about your illness and become a stronger advocate. This will also help you with what questions to ask your physician about your recovery.
When I was going thru rads, I kept hearing "new normal" on many replies. Eventually I finally learned exactly what that term meant. Everyone has their own unique reactions to treatments, medications, recovery, etc. The new normal is whats left after going thru treatment and recovery phases. Its the new and improved person after they have recovered. The new normal may have some long lasting side effects but they are as well as they can be and as close as they are able to be to their old lives. Im sure in time you will get to your new normal and begin to accept the changes you have been thru. Hang in there! Your new normal is many months ahead at the time when you have made many more advances in your recovery.
Being 6 weeks post surgery, you still have a long way to go with your recovery. The majority of patients will have most of their swelling go down by 2 or 3 months post op. For a complete recovery, the inflammation continues to slowly recede months down the road. Adding high protein whey powder to your diet helps to speed the healing, get your doc to ok adding this. Down the road you can get your surgeon to do some reconstruction to help make your tongue more comfortable. Usually the reconstruction is done after waiting to the one year mark post surgery, but some surgeons will do some minor tweaking 3+ months post surgery. You may benefit from having a speech pathologist work with you, they can do wonders with helping patients who have had your type of surgery.
Hope this helps you to feel a little more positive. You will improve it just takes time. Best wishes with your continued recovery.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |