Welcome to OCF! Its always great having survivors who have ben successfully treated to join our ranks.

The only in person group for oral cancer as you have already found out is SPOHNC. Many have found our online forum works very well for support. We are around 24/7 and the best part is anonymity. Your identity is protected, you only reveal what you want others to know. OC is a brutal and life altering disease for many patients and caregivers. After what we go thru, its not surprising that depression is very common.

I think you would greatly benefit from being part of our small nonprofit organization. There are several survivors I can think of off the top of my head around your area. We have a wonderful team of volunteers from both the dental community and members of our group that host a yearly oral cancer awareness screening and walk. Im enclosing a link to our events page so you can check it out and maybe join up with them. I have found over the years by giving back to help others is the very best way to help them avoid the pitfalls I fell into when I was sick. It also helps me to see past those terrible times and enjoy a fuller more productive life.

OCF Events 2017





Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile