@Christine B thankyou. I don't think i met anyone with an obturator. Does that affect ones speech.? I haven't had a voice in 2years n that has been by far the hardest challenge for me. I'd much rather speak then eat. Rads took both from me.
@stuart7 im sorry for what ur experiencing post treatment. I pray for a comfotable recovery.
Docs advice for me to pursue JAW SURGERY doesn't promise I'd get it all back but certainly might happen in my future. So to me it's a NO BRAINER. I have nothing to lose at this point.
Fingers crossed lol
Last edited by ChristineB; 04-11-2017 05:49 AM. Reason: removed religion from post
SCC 5/21/09 Base Of Tongue, Stage 4-age 42
5X Cipltn, 37 IMRT end 9/09
10/09 neck disection- 2nd Feed tube instal
2/11 Tracheostomy-
2/12 - 2/13 over 25 Diolations
2/14 Total voice loss
2/15 Total Laryngectomy Researched
2/16 Jaw bone starts to deteriorate TL put on Hold
6/16 30+ HBO dives
Annual PET shows NED until the hot spot lights up the jaw bone
1/17 Jaw Replacement research
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