I have the same type of question. I was diagnosed with stage 4 SCC of the maxilla and maxillary sinus last year. I choose not to do surgery but went through proton radiation. I had another biopsy in Feb and cancer cells were found in the maxilla, don't really know if the proton didn't get it or if it came back within 5 months. At this point I would like to try some of the new immuno or targeted therapy drugs which I believe are only available after chemo or in a clinical trial. I may qualify for one trial but have will get extreme chemo and the other half will get the immuno drug. I'm also considering just go ahead and do the chemo.

Now for my question, there are oncologist that advertise they treat head and neck SCC along with a host of other types of cancer. These doctors are closer to our home while the closest NCI cancer center is 100 miles away. Based on your experience would you go to someone who specializes in head and neck SCC or is a general oncologist okay?

Thanks for your experience/thoughts.