Welcome to OCF. Im sorry you have had difficulty for the past 8 months. Please understand our site is not made up of medical professionals. We are a large group of oral cancer (OC) survivors/patients and their caregivers. Our knowledge is limited to what we have witnessed ourselves first hand or fellow OC patients/survivors. Being patients ourselves, we do not have years of medical school or clinical practice behind us to put everything you have going on together to give you a diagnosis. It could be many things going on including something with your nerves due to the tingling and numbness. If you are concerned this could be OC, I suggest seeking out an ENT who specializes in treating OC patients. They should be able to at the least do a thorough OC screening so you can begin ruling out serious diseases.

Ive included a link to more info about diagnosing oral cancer. I wish I was able to help you more but unfortunately I simply am not qualified. Im sure you must be terrible frustrated by not getting a diagnosis to your symptoms. I hope you can find an answer soon.


OCF Main Site --- Symptoms and Diagnosis

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile