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| | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Welcome to OCF. Im sorry you have had difficulty for the past 8 months. Please understand our site is not made up of medical professionals. We are a large group of oral cancer (OC) survivors/patients and their caregivers. Our knowledge is limited to what we have witnessed ourselves first hand or fellow OC patients/survivors. Being patients ourselves, we do not have years of medical school or clinical practice behind us to put everything you have going on together to give you a diagnosis. It could be many things going on including something with your nerves due to the tingling and numbness. If you are concerned this could be OC, I suggest seeking out an ENT who specializes in treating OC patients. They should be able to at the least do a thorough OC screening so you can begin ruling out serious diseases. Ive included a link to more info about diagnosing oral cancer. I wish I was able to help you more but unfortunately I simply am not qualified. Im sure you must be terrible frustrated by not getting a diagnosis to your symptoms. I hope you can find an answer soon. OCF Main Site --- Symptoms and Diagnosis
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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