Thanks Paul. I have had the PET scan before. It gets a little uncomfortable at the end because you have to pee like a race horse.

That's pretty cool you were on the cooking show! My wife and I do watch a lot of cooking shows. I had to google marinol and got a real good laugh as I thought I knew every name for it.

The Hep C connection is interesting. I kind of thought I was just having a run of bad luck 😄😄.

It does get frustrating sometimes. You don't know what you have till you don't have it anymore. A little thing like saliva and swallowing a mouthful is an epic adventure. I have found that I have full taste for a toasted English muffin with a ton of melted butter on it. Seems to be the one thing that I get the same pleasure from as before. Maybe I'll try some lobster with butter this weekend. That would be glorious if I could taste that!!!

Thanks for the feedback!

Ed Kane


Edward, 64 yrs
7/21/2016 Dx BOT stage 4 w additional tumors neck & left lymph node
8/15/2016 began Tmt EBT w Cesplatin 1x week for 8 wks.
Feeding tube and port.
10/17/2016 finished treatment. CT still shows tissue. Dr. Says 60% chance it is scar tissue.
01/13/2016 PET Scan shows no sign of cancer.