OP Contributing Member (25+ posts) Joined: Dec 2016 Posts: 46 | Thanks Paul. I have had the PET scan before. It gets a little uncomfortable at the end because you have to pee like a race horse.
That's pretty cool you were on the cooking show! My wife and I do watch a lot of cooking shows. I had to google marinol and got a real good laugh as I thought I knew every name for it.
The Hep C connection is interesting. I kind of thought I was just having a run of bad luck 😄😄.
It does get frustrating sometimes. You don't know what you have till you don't have it anymore. A little thing like saliva and swallowing a mouthful is an epic adventure. I have found that I have full taste for a toasted English muffin with a ton of melted butter on it. Seems to be the one thing that I get the same pleasure from as before. Maybe I'll try some lobster with butter this weekend. That would be glorious if I could taste that!!!
Thanks for the feedback!
Ed Kane
Edward, 64 yrs 7/21/2016 Dx BOT stage 4 w additional tumors neck & left lymph node 8/15/2016 began Tmt EBT w Cesplatin 1x week for 8 wks. Feeding tube and port. 10/17/2016 finished treatment. CT still shows tissue. Dr. Says 60% chance it is scar tissue. 01/13/2016 PET Scan shows no sign of cancer.
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