Julie, It's almost impossible to get through this without some type of slip-up. We had instructions to force fluids during a certain period of time - easy with PEG, right? Too easy, my husband ended up vomiting. I blamed myself for not adding in amount of water required to flush tube each time and I am an RN. I made a color coded system for meds, fluids, etc.
I often thought that for medical personnel to understand how difficult this is they need to take a patient home with them and be responsible for their care 24/7 outside of a medical facility. Remember all the things you do right!
CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin. 1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016
|