 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Andy,
Welcome to the forum though I am sorry you needed to join in the first place.
The same oversight happened to my husband. He had really bad mouth sores, went to the ENT who told him it was nothing. Fast forward half a year, the mouth sores came back and the ENT said the only other patient he had had who had this happen turned out to have oral cancer. He referred John to the Otolaryngologist and our journey began. That's why I think ChristineB's advice to go see a doctor with experience with oral cancer is such good advice.
When you're getting supplies, make sure that the creams you get do not contain alcohol as it will sting. A vaporizer is useful as will a WaterPik, it will get rid of the gunk in your mouth in the most efficient way.
It may be helpful for you to have a tablet or iPad in the hospital. Some members have mentioned using a text to speech app on the iPad for the days immediately after surgery.
Hoping for the very best for you.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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