Lola, Congratulations on one year, but sorry for some continued problems.

As far as the infection, Is it osteomyelitis? That's what I had with the ORN. Has anyone suggested HBOT for healing? Culture to see the type of infection, what antibiotics are best if bacterial?

I had PTSD after my release from my 6 month hospital/Nursing Home stay. I didn't want to go into any hospital for a while, and didn't, for 18 months! I had formed a local team of private doctors.

Maybe you can speak with someone about your feelings in regards to your appearance if its effecting you, and sometimes we are our own worst critics. I know there are meetings or classes at CCC about feeling, and looking good also. Get out more often, and involved with activities, which sounds like you do. Post here for people who understand.

I cope by thinking the heck with anyone that doesn't help or understand! I never really had a problem though.

I hope this helps.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs