Christine...
our original plan was just that... we had a whole crew to help and share driving, caring , whatevering. That all changed when the oncologist recommended that we have the treatments at the main CCC rather than at a free standing off shoot center of the main CCC. He said, there is research to indicate it would be better for him.. all the speech, medical, etc team under one roof. So now, we will be at our home- much more isolated in the rural country and with no other sources of help. I had a minor panic attack with that, but will do whatever is in his best interest but am quite honestly, scared and worried about this very responsible burden alone. we are in a rural setting . thankfully not far from a CCC. but all the adult kids live at minimum an hour, 2 hours, and 3 hours away and all work. sigh.


MrsW
Wife, RN and CG to husband 55 yo diagnosed with tonsillar /lymph nodes SCC HPV+ 11/9/16- PEG and Power Port 12/9/16. Treatment started 12/27 Cisplatin x7 and RAD x35 on 12/28/16. Trismus had gotten worse!