I live in Florida and had my treatment at Moffitt Cancer Center. 33 Rads and 3 Cistplatin.

Recently spent time in Baltimore and went to Johns Hopkins. I was told there that I had several Hot Spots from over radiation in my mouth and that is why it still burns when I put anything in my mouth. I went down to 104 pounds. I drink Boost, protein shakes, CIB. They put me on Gabepentin for nerve pain. Helped a little but it dries my mouth out so bad. I woke up choking at night even though I use a humidifier to help me sleep.

Back in Florida again and back to Moffitt. Basically was told there is nothing they can do for me. Stop taking Ibprofen it will mess up your stomach. I said what can i do for the pain. Gave me a referral for pain management. Well unless you have neck, back, hip, knee, joint pain your SOL. If i don't put on wait they want to put jpeg in again. That won't happened. Any suggestions would be greatly appreciated. Thanks Pattie