It is not enough to find a good oral surgeon - you must find an oral surgeon experienced with H&N cancer. It is scary how many dentists and oral surgeons are ill informed about this. Shouldn't they be aware of what they don't know...
We had one "good' oral surgeon recommend extracting extra teeth, just in case, to avoid future problems. Without this forum, I would not have know how wrong that was. I don't expect every dentist to be able to treat and understand this complex issue. However, why aren't they educated to know that they need to refer H&N patients to someone with experience.
This must be coordinated with your RO and an experienced oral surgeon. My husband ended up at Head, Neck & Thyroid Cancer Institute in New York City (3 hrs from our home and absolutely worth the travel).
Hyperbaric, although still controversial, is usually recommended. There are many posts about extractions. It is a very difficult problem requiring vigilance. The good news is that several years later, my husband's ORN has been keep under control.
CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin. 1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016
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