 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 8 | Hi Punkin,
Welcome to the forum. It is not unusual for the mouth pain to last this long. what is important is for you to continue doing your swallowing exercises because it is likely you are not eating much by mouth yet. You do want to keep the swallowing muscles in good working order. Don't worry about the pet scan. If the doctor orders it, then he probably thinks that there's enough healing at that point.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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