Thank you for all the helpful information! We are very fortunate that my parents neighbor is a pediatric oncologist and has offered to help out with the trech and feeding tube whenever we need help.

Just trying to stay positive that this is going to be the only surgery he will need to get rid of it all!

The Surgeon we have is working in Tandem with a Vascular surgeon. They have teamed up to treat a ton of OC cases. They come highly recommended and thus far have been a blessing.