Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! You found the best place for info and support!
Treatment plans are very complicated. They are flow charts with many different options and variables considered. They are geared towards getting patients with similar diagnosis all the same treatment plans. I doubt there are stats available about how many patients drop out of rads. Im sure its a very low number of patients who dont complete their treatment plans. Actually, I was one who wanted to quit My son and nurses wouldnt hear of it. Rads isnt easy and it gets progressively more difficult as you go thru it. Off the top of my head I know of only 2 patients who stopped rads before the end. Sadly, I think only one of them is still alive.
I know its not easy! But with help you can do this. Almost all members have been thru rads. You have already gone thru so much, please reconsider quitting. I wouldnt want to see everything you have already done be for nothing. We are here to help you as much as possible.
The best thing you can do to help make this as easy as possible is to focus on your intake and pain management. If you can take in at least 2500-3000 calories and 48-64 oz of water every single day then you should feel a little better than if you are skimping on your intake. The key to this whole thing is how well you do with your intake.
I will post a great milkshake that will help make it much easier to hit your daily caloric intake minimums. Its probably easier to drink your calories. If necessary there is always a nasal feeding tube option. This will help to bypass your sore throat. Just no matter how sore your throat gets, please keep swallowing every single day even if its only tiny sips of water. Your swallowing muscles need to be kept working so they dont forget how to function.
There is always magic mouthwash to swish and spit before you try to eat. Ask your doc for a prescription. You can also ask for an open prescription to get extra hydration several times a week. After a couple bags of fluids you will feel so much better. This will help making hitting your minimums of water easier too.
Hang in there!!!! Theres lots of help here for you. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |