 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 8 | Jessica,
I am sorry you have to join this circle of friends, nevertheless, i welcome you warmly and I know everyone here will strive to help and support you.
It looks like you are already focused on nutrition which is probably the most important thing a caregiver can do for now. Do you have access to a therapist at the hospital? It may help for you and your husband to be connected to one, especially if he is feeling low. A hospital therapist will probably have experience with patients who have difficulty speaking clearly and have strategies to deal with that.
Please visit and post as often as you need. We have all been there and understand how important it is to have someone who will listen.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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