Hi. I wanted you to know that I'm sorry your family is going through this. I was a caregiver to my mother last year (along with my dad, brother, sister in law), and although she has passed away, I still check in on the forum from time to time. I saw that you're a speech pathologist. I was a speech path many years ago, too. Your background will be helpful, because as a therapist, you'll have some ideas for improving your father's day to day; and your dad may look to you to help him understand better what's going on. On the other hand, being a speech path can also mean feeling like you're carrying more weight on your shoulders-like you should know more how to help-how to fix things. At any rate, be there for him as much as you can, while still keeping your life on track-it will be a comfort to your dad and also help you to know that you're doing what you can for him. You can be the researcher, the phone call maker, etc. Mainly, though, remember to sit down with him and really talk to him sometimes-that's my biggest regret with my mom was that I was always so caught up in the actual care-taking tasks-the meds, the tube feedings, trach care, etc.-that I forgot to just sit and talk with her about her fears, her feelings, her favorite teacher, her best Christmas present, her favorite pet. Be with him. It's a tough road, but there are lots of people on the forum who are on the other side of treatment, and at this point, there's no reason to think that your dad can't be one of those people, too. I'll be thinking about you and your family.


Mom (beautiful soul) 12/4/14 SCC L tongue (neg. biopsy 10/14);
1/8/15 hemiglossectomy/neck dissection: T3N1, extracapsular extnsn, PNI, pseudoglandular/spindle cell, margins not clr;
2/2/15 RT/carbo/taxol;
4/15/15 CT clr;
5/15 neuropathic/trigeminal pain/headaches;
6/15 recurrence flap margins/BOT; cancer encroaching skin
7/23/15 hemiglossectomy; clr margins & nodes
10/22/15 CT: nasopharyngeal tumor, jaw, and necrotic nodes; tumor under chin/corner of mouth
11/5/15 left cancer behind