| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Everyone is different and will experience things in their own unique way. This is something that applies to so many things from how a patient responds to treatments, how they affect him, even how much weight the patient loses is a variable. Two patients that on paper look the same, same age, height, weight, sex, location of tumor, type of cancer, Stage, etc will have different experiences even though they appear the same. To me it sounds like your husbands physician is speaking in a general manner if everything goes according to plan.
After being here for 9 years, Ive seen all kinds of posts pass thru this forum. Ive seen patients sail right thru and end up as the doctor said, barely noticeable after effects. But to be honest, my estimate would be maybe 6 out of 10 are doing relatively well after the first year post rads. My guess is maybe an additional 3 out of 10 are struggling some but overall doing ok, almost back to normal. Then theres that 1% of patients that really have a tough time and at the 1 year post rads point they are still haveing a heck of a hard time with bouncing back.
I know its so hard not to worry, especially after reading posts about how some struggle. OC is a terrible disease with barbaric treatments and some patients do have life changing issues afterward, but remember its some, not all. Try your best to not borrow trouble by thinking too far ahead about what might happen, it might not too. Take it as it comes, stage by stage. During treatments focus on whats controllable... his intake is the single most important thing that will factor into how easily your husband gets thru this. Second is to stay attuned to his pain and relay everything no matter how seemingly insignificant to the medical team. By focusing on intake you can help your husband to get thru this so much easier. Every single day starting right away he should be taking in a bare minimum of 2500 calories and 48-64 oz of water. If he can do more like 3000 or 3500 calories it will only help make everything even easier.
Hang in there and please remember to take good care of yourself too. This isnt easy on anyone and caregivers have a very difficult job. We will be here to lean on and help you both thru everything.
Best wishes!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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