Welcome to OCF, Laurie! Im sorry you are going thru this! Im sure it must be frustrating for you to have gone to so many specialists and still have your problem.

Upfront I want to make sure you understand, our group is made up of oral cancer patients/survivors and caregivers, not medical profrssionals. We dont have the depth of medical knowledge, years of schooling and patient care your physicians do. Our advice to you comes from what we have learned from fellow patients and caregivers. That said, we will always do our best to help every person who comes to us for assistance as much as we are able to.

I have seen members join us who have had leukoplakia or dysplasia. Most have their "spot" removed out of concern it will turn cancerous. Dysplasia more often does not turn into cancer. Quite often the "spot" grows back so it is removed again. This becomes a cycle of watching their "spot" every day for changes and when it returns to have it removed again over and over. Ive seen several who have been thru this 4+ times. In my opinion after seeing what these other members with dysplasia have been thru, your ENTs method of checking you every 3 months doesnt sound like such a bad plan. A second opinion is always a wise decision. Please keep us posted as to what the 2nd ENT suggests. Heres more info from the main OCF pages...

Best wishes!!!


OCF Main Site... Premalignant lesions