Hello John, It sounds like you have been through a lot this past year .
Having that positive mind set is so important in surviving well. Yes, it is difficult when you can both no longer eat or talk with others. I agree that it is so socially isolating. I find that most people just can't be bothered to try and communicate, perhaps they find it too hard. My Husband Kris is ,like you ,socially isolated due to having no tongue and no voice box. He is fortunate in that he has always enjoyed his own company. If it wasn't for me , our children and 2 close friends he wouldn't see anyone. It is now over 4 years since his salvage surgery though and Kris is surviving well. He is healthy, happy and has adapted well to his limitations. So much so, that I don't think he perceives himself as having limitations, or being disabled in any way. I think the trick is to find something that keeps you busy and occupied. Kris does online MOOC courses/papers with assignments which he really enjoys. Otherwise he maintains our 3 acre home and garden and of course I drag him out for walks, movies, coffees , international travel and such like. I want you to know that life does get better. The first year or so was very difficult for both of us. Now, life is great. Different, but still good
I wish you well,
Tammy