OP  "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | Hi
I'm a member of a group of head and neck patients setting up a support network in New Zealand. From talking to our (at present small) group, it looks like the biggest unmet needs are in post-treatment dental care and information. Patients want more info. They don't want it drip fed from diagnosis but told to them honestly right from the start. Apparently some patients are called "blinders" because they don't want to know but does that mean the rest of us cannot be informed more thoroughly? What do you think?
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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