My oral cancer was in a different part of the mouth, so what I learned might not apply to you. But as for general stuff:

I took my scans and photos and went to a different hospital and got a second opinion. Even though both hospitals suggested the same treatment, I learned along the way that some places are still doing an older method that would have caused me more disability. So you could ask them if there are other approaches, and you could research those.

Also, even though OCF has been my best source for help, I also got a few good tips from SPOHNC, including their book "We Have Walked in your Shoes." And the American Cancer Society helped me out with one thing.