I am having trouble getting approved for Opdivo. It is in the appeal process. I have what I thought are all the qualifications. Head and Neck Cancer with original treatment on Cisplatin. Currently have lung mets. I was on Erbitux but it quit working. I really have no other viable options that have proof of working. I have very limited time. My tumors doubling rate is pretty quick, last 2 months it grew 3.5cm, which means that tumor will be 7cm two months from now. I have another tumor on the opposite side of lungs also. My whole feeling like I could beat this is going away quickly. After losing the other two guys on here that were ahead of me in treatment and diagnosis of lung mets, makes me chronologically the next one to go. Now it seems paperwork will be the death of me. I just don't understand how when there is a drug that has proven to put lung mets in remission, that it is so difficult to get approved. With only a 15% success rate, I need to get this drug and find out if it works on me quickly so I may have time to find a trial or start going down the panic of out of country physicians and/or the long list of unproven and sometimes odd treatments. Feel free to IM me to get my number if you have more info on any of this or message me or reply to post.


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health