Amy,

I've been where you are nearly 11 years ago. Take the pain meds - they will help you with eating and healing. Take a day at a time. Focus on getting liquids and nutrition. I found that frozen ice (such as Rita's) was great for my swollen and painful tongue. Everyone is different, and it's been many years since my surgeries (had 4 on my tongue), but I believe the swelling was down within 1-2 weeks.

Both my parents developed dementia after I was diagnosed with OC, so I know what you are going through. Sorry to hear about your father. Can anyone help care for your mother? It is very difficult to be a caregiver to someone with dementia when you are dealing with your own health issues.

And welcome to OCF! There is a lot of great information on the website and this forum.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2025 (ORN of lower jaw)