I have been reading about lifetime RAD exposures and how it's unlikely that the same area can be treated again if the cancer returns in the same place. I asked my RO about this today and he confirmed that if my MEC returns in the same Parotid bed, he most likely will not be able to use RAD to treat it. Apparently the 60 Gy I will be receiving in total for my 6 week treatment will be too close to lifetime dose. I am concerned by this. If it comes back, which some say is unlikely and some say is likely (nothing much in between), there will be no treatment other than surgery with some chemo if necessary for tumors that they can't remove. None of that sounds like a cure to me - just a slowdown in the inevitable progression. I REALLY would like some clear answers but it seems Oncologists are amazingly vague. They don't seem to want to discuss "what ifs" or "recurrence rates'. The RO that I went to for a 2nd opinion said recurrence rates for my Parotid MEC are about 35%-50% which seems very high to me. I guess I need to hope it doesn't return in the same location or there won't be much they can do for me... Has anyone had a recurrence in the same place and did they do RAD on it anyway?


1/11/16 Parotid Tumor Removal
1/14/16 Mucoepidermoid Carcinoma Dx Stage 2, Low grade
1/29/16 Tumor Board agrees 30 IMRT RAD
2/12/16 PET says no MET, but "bilateral tonsils reactive"
2/17/16 RAD treatment began