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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hi Tracy! Welcome to OCF! You have found the biggest and best source for correct medical info and advice. You will learn alot about your illness to help you become a strong advocate for yourself. We are here to help you get thru this!
You will find an unbelievable amount of info both here on the forum and on the main OCF pages. You can get to the main site by clicking on the tiny blue OCF Main in the upper left corner of any page.
Yes, patients can notice irritation after just one radiation treatment. Some people are more sensitive to it than others.
Probably the most important thing I can tell you is to eat and drink water. This is what will make or break you during rads. Every single day you should get at least 2500 calories and 48-64 oz of water. If you can take more in like 3000 calories that is even better. I know it sounds like alot but your body is burning it up at an increased rate during rads and recovery. Weight loss during rads should be kept to a minimum, doctors like to see zero weight loss which is very difficult to do. To help with fluid intake, there is also the option of asking your doc for an open prescription for extra hydration (usually done in the chemo lab).
Pain management is also very important. Many here have used the fentanyl patch for a short time with it helping them tremendously. Directions on the patch must be followed to the letter! Never ever fold, rip, bend, tear, cut or damage the patch before putting it on or it could release too much of the medicine at one. Also avoid long, hot showers or baths when using the patch.
If you read thru posts, you will pick up on all kinds of tips. Stick with us and we will help you get thru this and your recovery.
PS... To avoid any confusion with having 2 threads going at the same time Ive joined your posts together. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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