Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | Dear Mermaid,
If you mother has opted for no treatment, you may want to considering linking her up with a palliative care team. Contrary to the popular thinking, palliative care aims to provide comfort to the patient and they just don't treat patients aggressively. They will, however, do what they can to keep the patient in comfort. When my husband was in palliative care, he had a nurse visit him once a week, he was given the appropriate pain medication (hydromorphone made him delirious, so he was given a very small dose of morphine 1/16 of a teaspoon to start), he was given antibiotics for his pneumonia as well. In addition, a personal support worker came three times a week to bathe him and to change the linens. So, don't wait too long to get your mom the comfort that she's hoping to have by leaving her worried about pain at this stage.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. |