Hello. I'm from NC. Two time survivor. Stage IV nasopharyngeal 2009/tonsil 2014. 44 years old. Looking to connect, help and seek answers too. I am very interested in helping locally. There have to be people looking for answers or even help that my experience can be of service. Im a patient at Duke currently and in good health as far as I know. I've just reached this point where i want to help people if I can even if it means reaching out or sharing my experience. I'm not sure how to use the forum layout yet so bear with me. Peace...
Matthew 44 years old Former smoker 12/09 diag Stage IV SCC Nasopharyngeal 1/10 6 rnds cisspl/35 rad PEG tube 6 mo Xerostmia (permanent)/Loss of taste/smell 6 mos+ Clear PETs 2 years Clear MRI 2 more years 12/14 HPV pos SCC left tonsil 1/14 Tonsillectomy on left + one for clr mrgns 3/14 Removal left lymph nodes Ongoing-check ups and screening at ENT QOL overall good. New normals, but happy to be alive and learning more everyday to overcome fear and enjoy my life and my family.
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