Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF. Im sorry you have the need for our group. I know how awful it is when first diagnosed. The unknown future that diagnosis casts is very scary.
First I would suggest you read and educate yourself about oral cancer. If you have not already gone for a second opinion that would be a great place to start. Surgeons always will say surgery and radiation oncologists will tell you rads is the way to go. When being examined by a comprehensive cancer center (CCC), you will be treated with a team based approach so everyone is on the same page.
Ive sent you a private message (PM). Look next to the My Stuff tab and click on the tiny flashing envelope. The link Im sending you will help you to add a signature and help you quickly learn how to navigate the forum.
Now that you are a member of our group, you are not alone with this. We will help you get thru it. Best wishes with everything!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |