Theresa,

I also had a recurrence (same location) just at about 4-1/2 years after surgery #1 (and this was post-RT). Believe me I was scared, and ended up going for multiple opinions, and the recommended treatment varied greatly! I ended up being treated at Johns Hopkins in Baltimore with relatively minor surgery! A year later I ended up with dysplasia (same location), and had surgery again, and have been in the NED category every since. It's been 10 years since my first surgery and 4 years since my last.

I posted about my recurrence on the forum. Click on my name, and select View Users Posts, and then Topics Created, and look for the posts in 2010 and 2011.

If I can answer any questions, just ask. Wishing you the best!


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)