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| Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | As PaulB and tamvonk says, any pain as well as anything new should be evaluated by your medical team, even if you were told you are now cured.
To answer the question, yes all of that can be late effects of chemo and/or radiation. We can even have brachial plexopathy from the head or top of the brachial plexus nerve bundle that is around C-3 in the cervical spine caused by what is termed "drop neck syndrome" or just having the scalene muscles developing fibrosis from radiation. People texting all the time or working on a computer all day can develop the same pain radiating from the scalenes. The pain, tingling and numbness will usually go over the outside of the shoulder and down the arm.
I am more concerned with the numbness and symptoms on the side of your head. That might be early signs of carotid artery occlusion. If you haven't had a baseline Doppler study ofnthe carotids, I would do that soon. If you have and it's been a few years, it might be worthwhile to have another one. Be sure and let the doctor know and if you are having intermittent headaches, mention it. One thing that I learned from an aftercare PCP is non-HDL cholesterol should be kept around or below 100 if the carotids were in the radiation field, as any cholesterol plaque accumulation innthe carotids can dislodge and cause a stroke. Vision or hearing issues are also something to be checked out.
Your asthma could also be signs of aspiration if you haven't done any swallow studies. We should have one the first couple of years after treatment and then if we have any swallowing problems later. Aspiration in the lungs can easily cause wheezing and bronchial spasms or difficulty breathing.
I have been doing extensive research on the connection between the vagus nerve, the sinus branch and the timpanic nerve as they are related to the dizziness and issues of barorecptor dysfunction or jaw pain that is common with tongue and tonsil radiation, especially with nodal involvement.
The crazy part in all this is nobody really follows us for post radiation issues, mostly because it is so variable by patient. I was just lucky enough to get more than a couple of them.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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