Hi. I'll add my 2 cents worth although it doesn't cover your query. First of all, commiserations. You are going through a painful and frustrating time. Years before I was diagnosed with oral cancer I had ongoing mouth inflammation, candida and lichen planus. The lacy white lichen planus lasted for a little while but then settled into one ulcerated tongue lesion that then turned into cancer after years of pain. In the end that lesion might not have been lichen planus at all.

During my "lichen planus" years, I got so frustrated that I searched for people online who did research into the condition. I found one at an NZ dental school and emailed him. He told me to get myself to an oral health specialist. The point of this story is that no one could help me. I'd seen an oral surgeon and a dermatologist, my GP, my dentist. I had my mercury fillings out after an allergy test. The only thing that helped was a dose of steroids. Okay, my lesion was probably more cancer than lichen planus but they all thought it was lichen planus and they could help me get rid of it. This was prior to 2007.

If I were in your shoes I think I would do what I did back then. Conduct my own research, see if anyone anywhere has found a way to limit the lichen planus. I don't think that widespread lichen planus turns to cancer. I think its just the ulcerative lesions that are a worry.

Best wishes.