My husband is doing amazing. He only has 7 radiation treatments left. Some mouth sores but manageable with meds. I've had him on constant mouth regime of various concoctions. No PEG tube and no weight loss. He's living on high calorie high protein Carnivor Mass shakes from GNC made with whole milk. Had second cisplatin dose this week with some mild nausea for 2 days. We keep waiting for it to get bad. Hope it doesn't. His second cisplatin had to be delayed a week due to low blood counts. I have a feeling they won't give the third dose. It couldn't be done until 1-2 weeks post rad. Will find out next week. Our next step is getting most of the 10 extracted teeth back. I haven't posted much but this site has been so helpful. Who ever posted about the cold neck cloth immediately post rads, it worked. I took it one step further and soaked the bandana in 99% drinkable cold aloe Vera. Sometimes with pure aloe Vera gel also. Hope this keeps on a positive track.
Kate, wife of husband with May 2015, SSCA left lateral tongue, T2N2bM0 Stage 4 , Age 58 06/01/15, L hemiglossectomy, modified L radical neck, clear margins, 2 nodes positive, no extracapsular extension. Perineural invasion on lingual nerve in tongue.
Tx completed 8/28/15, IMRT and 2 high dose cisplatin. 12/15 negative PT scan 5/16 negative PT scan 2/16 fitted with partial denture 12/16 3mm area of exposed mandible identified. Started on pentoxifylline regime 3/17 completed 40 HBO dives. |