Everyone is different and will vary slightly from other patients. Even patients with the exact same type of tumor in the same location can have very different outcomes and experiences.

Sounds to me like you are worrying alot. Its only normal to be concerned. Just remember, stress is not good for anyone and can make symptoms appear much worse than they actually are.

Have you scheduled an appointment with an oncologist yet? Hopefully you will get into MD Anderson and things will start to move along quickly. Ive been fortunate to have met the top guys at MD Anderson at the OCF Houston walk last year. To me, it sounds like they really know their stuff there.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile