Hello Everyone,

I was diagnosed with adenoid cystic carcinoma nearly a year ago. I have had a lot of surgery and there is more to come in the next few months.

I used to have a large public life, but now, because of my facial disfigurement I have a small private life. It is however, no less happy.

I no longer work or volunteer. I do prepare delicious healthy food, exercise by jogging, joy walking and practicing yoga. I have lots of massages, and treats that pamper my soul, and I meditate everyday.

I am a learner and a good listener. I am keen to learn more about adenoid cystic cancer from people who have experienced it. I am keen to support others.

I look forward to getting to know you.



Adenoid cystic carcinoma - right maxilla
24.09.14 Right maxillectomy
08.12.14 Reconstruction of maxillary defect with left fibula free flap.
23.12.14 Endoscopic medial maxillectomy.
31.03.15 Completion of IMRT, 60 Gy 30 fractions.
24.08.15 Secondary reconstruction of right mid face, utilising right radial forearm free flap.

Happy :-)