OP Supporting Member (50+ posts) Joined: Nov 2014 Posts: 73 | Thank you for your responses. I have had my PEG changed out 4 times. Once in Office and twice in out patient. It was originally placed at the end of a badly keloid Gallbladder removal scar. The first PEG was large and others smaller. The opening didn't get smaller but did develop a growth about 1/4" in size on side which bled and leaked everyday.
The one replaced in office - the tube filled with blood. I returned to Dr and he had my wife flush as he had no syringes in office.
I have made and appt with a surgeon to discuss remove the stoma hole all together (football shaped cut around the hole). Then stitch it back together in layers.
T4,N2,MO SCC of the BOT hpv+ Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015 PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015 Clear 4.9.2015 PET/CT H&N. 11mm low SUV nodule RUL on lung PET/CT 2nd PET 8.25.15 10+ numerous nodules bi later lungs 9.9.15 Lung biopsy SCC Org BOT Avastin and Torisel clinical trial 11/15-3/16 MDA Home 5/23/16 Pet scan 50% growth & +SUV Opdivo 6/2016 Synthroid 100 mcr Scan tumors shrinking Teeth decay 9/2016
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