The cancer metastasized to one of my husband's lungs six months after treatment. It was, like you said, a surreal experience. The RO said there was nothing he could offer us but that we should talk to the MO who is in charge of drug development at the hospital. That was how my husband got into his first trial. If that is the route you may go, I would suggest you find out a bit more about the different phases of drug trials and let your MO know that that is what you would like to do. That way, they will look out for trials which are recruiting patients. The up side of being in a drug trial is that the patient is very closely monitored and so you get to see the doctors a lot more. The down side is the uncertainty -- there is very little statistics about new drugs so even the doctors cannot tell you a lot about what you could expect to see happen.

We have over the last two years learned to take it a day at a time. We don't worry about the results of CT scans until the moment we are actually getting them from the doctor. We feel that we are in a holding pattern for now. We know things can't go on like this forever, but one never knows.

Keeping you, your husband and your boys in my thoughts. If you have further questions, please feel free to ask.