OP Supporting Member (50+ posts) Joined: Nov 2014 Posts: 73 | I've had a red dry rash on my neck in several places for last 10 days. Anyone experienced this? Suggestions?
I still have sticky phlegm which I spit out frequently. I sleep sitting upright.
My RO seems to think I ought to be eating and drinking by now.
My ENT got me a swallow and speech therapist and I do exercises. I can get down 8 oz of pur�ed foods and 4oz of honey thick liquid. But it takes me a while. I feel it getting caught up. Even though it's baby steps I feel I am moving forward. It feels confusing when RO thinks I should be drinking water regularly. He just doesn't seem to get the fact I choke and therapist watches me. She feels I need to be cautious as I was hospitalized with aspiration pneumonia in Dec.
I still have my PEG and my weight fluctuates even though my calorie intake is same. I am on liquid hope and do well with it.
My pet was clear but for a spot in a lung. Next scan is August.
Last edited by larry6905; 04-18-2015 02:25 PM.
T4,N2,MO SCC of the BOT hpv+ Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015 PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015 Clear 4.9.2015 PET/CT H&N. 11mm low SUV nodule RUL on lung PET/CT 2nd PET 8.25.15 10+ numerous nodules bi later lungs 9.9.15 Lung biopsy SCC Org BOT Avastin and Torisel clinical trial 11/15-3/16 MDA Home 5/23/16 Pet scan 50% growth & +SUV Opdivo 6/2016 Synthroid 100 mcr Scan tumors shrinking Teeth decay 9/2016
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