Cheryl - I did get some more info on the chemo & rads, just still wondering about the about of rads (seems like a lot - more than 6 weeks).
Finally the Dental Oncologist let me eat - yay! Has me swishing every hour on the hour with baking soda/salt solution. Loosened some things up that were left over from the surgery. Doing well, eating things either liquified or in teeny tiny pieces. They derided the flap before hand and things are going much better. The right half of my tongue is a bit numb though, I think it may be permanent (that wasn't the area where the flap went) due to the wisdom tooth that was removed. Funny thing about the eating - it is exhausting, and I am still relying on the PEG for most of my nutrition. Believe me, when I chew anything it is definitely on the opposite side and I am super careful. Don't want another cheek bite to put me back in free flap surgery again.
Thanks so much for the info. This surgery isn't bad (I had very little pain) but it has taken me quite awhile to get the use of my body back. I had a bad go round with prednisone and didn't heal as expected. Left arm is still sore and recovering, PEG is still infected (staph) but hopefully that will be resolved within the next few days now that the buttons are off), still a bit tender in the area of the neck dissection.
Heather
11/2014 - DX SCC, S3N0M0 Non-smoker/drinker/drugs, no cancer of any kind in family, HPV negative 2/10/15 neck dissection, nodes removed (all clear), moderately differentiated mass removed from cheek & hinge of jaw, free flap graft. Clear margins. Micro infiltration into some of the vascular structures in the local area of tumor. PEG tube 1 week later 4/6/15 - Begin 40 Rads & 4 rounds Cisplatin 5/27/15 - rads & chemo complete. 12/5/15 - PET/CT clear. Watch & wait...
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