 Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Andy,
Welcome to the board, but sorry you need us. I had an unknown primary with mets to one lymph node in the neck. My RO said sometimes the primary shows up during radiation but mine never did. They didn't do a Pet scam, but not certain pet scans existed back in 1997. CT scans never found anything. Just wanted you to know that while rare, unknown primaries do exist. Keep us posted on what they find.
Take care,
Eileen
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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