Hi Uptown, Its so nice to here from you. Stephen had been doing yoga and neck stretches every day until a couple of months ago. He stoped because it inflamed his jaw and neck. His radiated skin is slowly getting tighter. The discomfort takes a lot of his energy. He still paints full time since his radiation ended but he must take a lot of short breaks.

After posting my last message I fell asleep to be awoken by Stephen. He was in pain and is celulitis. So we went to tye emergency at midnight and are back home at 5AM. We caught it earlier then last May when his face got more swollen then after surgery.

Stephen is struggling and trying to deal with the progression of the tightness and discomfort from his radiated jaw. It feels as hard as a block of wood. He wonders why radiologists do not consult on this life altering long term suffering. Mostly they talk of emediate risks. He is generally positive, though our joys are quieter now. I am keeping a positive perspective. He is alive and I love him.

Sophie

husband 61@diagnosis painter
6/9/13 Exophylic invasive SCC IV(ext.gingivobuccal) 3cm+ mandibular/lytic/erosion, jugular/node9mmshort-axis
17/9/13 Dx(moderately aggressive)
24/10/13 left madiblectomy, mod radical neck disct, leg flap, NGtube
2/01/14 (30 tx)rads 60gy
N2b (2nodes under jaw) (rem. in tiny nerves) (rem. 30 nodes)
Clear margin, close 2mm inner cheek
15/05/14 cellulitis
3/12/14 Chest CT Clear
27/02/15 cellulitis
8/6/15 cellulitis
10/6/15 Osteomyelitis