Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Brooklyn Bridge, your account of the original surgery is quite confusing, as asked by others but not answered yet. It might just be a terminology issue.
From what I am reading into it, your surgery did not involve removing bone from your arm and using that to rebuild the jaw. They used a flap created from the forearm and grafted that skin into your mouth. That flap is now where your recurrence is located. Am I understanding that correctly? A comment was made that seems to infer maybe having bone cancer from implanted bone from your arm. I know we use different words here than other countries.
Do you remember the name you used here previously?
As far as the teeth, as Gloria pointed out, you would need what we call here a dental oncologist to do a thorough evaluation as to what teeth may be an issue prior to radiation/chemo.
Over the years there have been a few folks here with squamous cell carcinoma of the skin after treatment. Some even around the PEG insertion site. I have often wondered if it was related, but all the doctors have ruled it out.
Best wishes for smooth sailing!
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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