Hi Gayle - I hope you are starting to feel a little better now. I was also a non-smoker, worked out regularly, and ate healthy, and rarely drank. I was diagnosed last year at 38 and in August I had a partial glossectomy with a radial forearm flap. I was fortunate that my initial recovery went pretty quickly, but now it feels like my recovery is at a standstill so I feel your frustration. It does get better. I found that focusing on the simple accomplishments really helped lift my spirits. Never thought that at my age and prior health I would be so excited to be able to get out of bed on my own, or use the bathroom alone. I decided to see it as being kind of a fun challenge - it was like reliving being a toddler all over again with all the excitements of simple accomplishments and simple joys. Now that I am mostly recovered, I am focusing that same energy into enjoying finding out my new 'normal' - what foods taste good now, what things do I now want to focus my energy and time into (and what do I not want to do anymore), etc. Just know that there is a community of supporters if you ever need to chat.


Female, Age 38, healthy non-smoker, rarely drank, regularly workout
May 2014 noticed irritation on tongue
6/18 saw doctor
6/25 saw ENT specialist got biopsy
6/30 Dx HPV P16+ ve SCC tongue cancer
7/9 CT scans, no visible spread
8/20 partial glossectomy with radial forearm flap, neck dissection 26 nodes sampled - results T2 N0 with mild dysplasia
4/2015 start to have ear pain
5/2015 recurrence
6/4/2015 surgery 29 nodes samples pN 2c
7/13/2015 7 wks of Chemo & Radiation start